Hole in the Heart

Book excerpt: 'Wonderful, astonishing drawings... A masterclass in the sorrow and joy of being human, and a powerful reminder that nothing is more earth-shattering than love.'— Meg Rosoff The mother of a daughter with Down's Syndrome shares her family's journey—in beautiful black and white drawings—from hospital to home, and from early years to school, in this moving, wise and unsparing graphic memoir. On Mother's Day 2001 Henny Beaumont gave birth to her third child. For the first four hours, her baby seemed no different from her two other little girls. When the registrar told Henny and her husband that their daughter might have Down's Syndrome, she thought that her life was over. How would she be able to look after this baby, who might die, and manage her other two children at the same time? How could this weak little baby, who needed so much more from Henny than her other two children, provoke such feelings of hatred and resentment? And how would she learn to love her? If she can't trust her own reactions to Beth, how could she expect other people to overcome their prejudices and ignorance about her condition? Hole in the Heartis a moving, funny, ironic and refreshingly honest look at living with a child who has special needs. Henny's remarkable journey speaks not only to parents who have had a similar experience and the medical and care professionals who try to help them, but to every one of us who feels anxiety about our children – wondering whether they are achieving enough, whether we do enough for them, and whether we love them enough. As the PE teacher asks: 'Who's really got the special needs here?'